Best Practices Summit

Nicole Petrykowski, DNP, FNP-C, OCN , focuses on desmoid tumor treatment and management, emphasizing shared decision-making with patients. Initial management often involves observation with scans every 3-6 months. Treatment, using sorafe...

Alexis Spence, PharmD, BCOP, shares how clinic pharmacists play a vital role in the care of sarcoma patients, especially those with rare desmoid tumors. They provide an extra layer of support, reviewing medications for potential interact...

Anne Mailhot, PA-C, discusses how her clinic focuses on managing symptoms, primarily pain and quality of life, rather than solely the size of the desmoid tumor. Treatment begins when symptoms interfere with daily life, and its duration i...

Julie Messina, PA-C, explores desmoid tumors treatments and how they often use agents that can affect fertility. Treatment options include nirogacestat and sorafenib, but data on the effects of tyrosine kinase inhibitors on fertility is ...